Thursday, March 19, 2026

Happy Birthday, Rudy

 

Today is my older brother's birthday. He was born March 19, 1968 and would have turned 58 today. He's been gone since December 2024, just over a year. I still think about calling him with news or texting him to see how he's doing.  

 
Dave and I bought a small lemon pie for him, the kind he liked to get for himself as a treat, to put on his altar for his birthday. I miss him so much. 

When I think about all the hurt and unfairness in the world, I think about how my brother had more than his share. I hope he is in a good place now, in no pain, surrounded by love. 


Saturday, March 14, 2026

Complain

I don't know when I wrote this, it's been awhile: 

 For the last several days we've been down to one bandage change a day, which is lovely. Even so, I'm still exhausted (see also bad sleep, allergies,  and hormonal issues).

Day before yesterday was another shower day but I slipped it.  I skipped it because I still need help in the shower and we pushed the time back until it got to be too late and I was just too exhausted to contemplate the hour plus that it takes to shower. I ended up showing the next day though. 

My sleep schedule is flipped around.  I am exhausted all day, nap through the day, then go to bed and lay there not sleeping most of the night. I remind myself that I am still healing from major surgery, but truthfully this is not that unusual a sleep pattern for me. I am still healing though and that does contribute to the exhaustion. 

I haven't sewn anything since we came back from Florida. 

And now to jump back into the present day:

We had lunch with my mom today, pizza and salad and pie with ice cream for dessert (it's pi day and our anniversary). 

Allergies are kicking my as right now.  My eyes are constantly itchy and my sinuses feel like someone parked a bus in them. I'm not taking anything for it, of course.  I use eye drops and saline nasal rinse, but I can't stand how antihistamines make me feel, that dried out zombie feeling. Even the ones that are supposed to be non- drowsy make me drowsy. 

I'm complaining a lot, I know. 

Thursday, March 5, 2026

On and On

Yesterday 

I spent most of the day in bed watching videos. I also napped a bit and ate a lot. I have to keep reminding myself that healing takes time and energy and I don't want to impede that process my being impatient and trying to do too much too soon. But this feels beyond indulgent. A dilemma. 

Complete recovery from a procedure that's gone perfectly is 6 to 8 weeks.  And mine did not go perfectly.  In the end it will have tacked on about four additional weeks just to get to the point where the incision is closed. So... then what? Then I can raise my arms above my head again and lift things heavier than 10 pounds and start doing some exercise beyond creeping around the house tethered to my oxygen concentrator.  

But until then, rest.  Videos. 

This week my mother had cataract surgery.  Luckily my aunt was able to drive her to and from the appointments, though my mom did drive herself to her follow up appointment. 

Today 

Dave got the time wrong and ended up missing his PT appointment. There are too many plates spinning right now. It's hard to keep track of everything. 

I had therapy this afternoon, but only 30 minutes of therapy.  Therapy is too exhausting to even contemplate am hour of it. Thirty minutes goes by fast, but I still took a two hour nap after. 

We had leftovers for dinner-- leftover chuck roast and mashed potatoes for me and leftover pizza for Dave. We had to run to the pharmacy after so we stopped and picked up some groceries including a near- pint of vanilla ice cream. We never buy ice cream at the grocery store, so it was a rare treat. But unfortunately the enshittification of everything in the US continues, so a "pint" of ice cream is now 14 ounces (so it's not a pint) whipped up with added air until it fits into a pint sized container. It's just vanilla flavored nothing, not even as nice as soft serve. We had a few spoonfuls each and then tucked it away in the freezer to throw out later when it's freezer burned. 

Sigh. 

It's been a long, tiring day for some reason. 

Monday, March 2, 2026

Physical Update (33 Days)

Except where it is still open in my left armpit, there is a scar. The scar runs from under one armpit across my chest and under the other armpit.  Under my fingertips it feels like satin stitching only smoother, done with skin instead of thread. But that is only the part that I can feel.  Where the incision curves up into an artificially or perhaps artfully created cleavage, there is still tape that the surgeon put on over the stitches. The tape is intended to last for weeks-- usually two to three weeks, but in my case it's been a month. The only thing I've done to try to remove it is to allow warm, soapy water to run over it. Pulling it off is a very bad idea as it can rip skin and cause even worse scarring. Not that I care about scarring, but I do care about ripped skin. 

We are still doing twice a day dressing changes, but we've moved from the 5x9 inch ab pads to large silicon bandages. The open area is about an inch and a half long and it gapes open in the center. Skin is growing down into one side of the gap and soon it will be covered with skin. Then we can probably go down to one dressing change a day just to keep the healed area moist while the scar continues to form.

Scar care can go on for months to years.  The surgeon recommends putting sunscreen on the scar even though it is completely concealed under clothing. They also recommend keeping it covered with silicon tape. All of this is meant to keep the scarring area covered and moist so that the scar stays soft. (I haven't started with either the silicon tape or the sunscreen yet as I still have tape and an open area on the incision.)

I'm so...disconnected from that part of my body.  In the month since the surgery I've looked at myself in the mirror less than half a dozen times.  When I have to touch any part of the area, I sometimes cry. (Touching makes it real.) Things are looking better, but they're also still scary looking. The bruising was substantial and some of it persists even now, though it is largely faded. Large bandages cover the grafted areas, and underneath there is healthy pink skin, but between the bandage and the healthy pink skin there are black crusty areas (this is perfectly normal).

I'm blessed/ cursed with an extraordinary amount of feeling in the area, especially in the grafts. Everything, even light t-shirts feel like sandpaper.  My Brain interprets it as pain and I have to slow down and tell myself it's irritation, a step down from pain and the implications of being constantly in pain.  This is more like...how a mosquito bite is sometimes so tolerable that you forget it's even there and sometimes is so itchy that it makes you think you might go crazy from it.

I still get nerve zaps, only they feel deeper and more profound. My nerves feel like everything is cranked up, my hearing even. 

The muscles in my neck and back aren't sure what to do. I still sit hunched over, my shoulders pulled forward by the weight that isn't there anymore.  The whole area feels tight, like I was cut apart and stitched together again. 


Friday, February 27, 2026

Toast

 I left the house today, the first time in many days. It was just to run some errands with Dave and I didn't get out of the car (in fact I went in my pajamas and will change into a new pair of pajamas now) but it still counts! 

The incision is rapidly healing, which is good. We're still doing wound care twice a day but that should only go on another week or so (hopefully). It will be a relief to have everything healed up-- though changes due to surgery can be expected to go on for up to a year.  No, really. 

After our errands, we came home and I changed into new pajamas.  It was late enough to start thinking about dinner. Then it was late enough to make dinner.  We had grilled cheese sandwiches with quorn added for some extra protein and on the side there were potato wedges and roasted zucchini.  I ate too much and now I'm tired but I'm trying not to just sit or lie down after eating, so I got up and at least puttered around a bit. It's so much easier now to do even that little bit of motion now. Crazy. 

In other news: My phone has been screwing up text messages for awhile-- like, years--and today was no exception.  I managed to get one text sent out to my mom and one to Kelly before my phone just stopped sending them. (I need a new phone but I don't want a new phone.)

Okay, that's it for today.  I'm toast.