Thursday, February 26, 2026

The Hospital Experience (Rough Draft)

It has been almost one month since the surgery. I spent fifteen days in Florida and  I've been home for sixteen days. 

There's a lot I never wrote about my experience with surgery, particularly the hospital, a small teaching hospital in South Miami, which was a horrific place. 

I should have known it was going to be a shit show when they had to reprint my intake paperwork in English because they had assumed I only spoke Spanish based on my last name--and the surgical techs and nurses claimed not to speak English, only Spanish. I get it, they serve a primarily Spanish speaking population in Miami, but even the ones who claimed to be bilingual were not and not once was I offered a translator or translation services, even when it was clear that they were not able to convey information about treatments and medications adequately.

Oh, but that was just the beginning. I haven't talked about how the anesthesiologist--the head of the anesthesiology department, turns out--came in to the room where I was being held before surgery and told me he was one hundred percent sure that I was going to spend two days in the ICU on a ventilator--this was while I was sitting in a hospital gown prior to surgery. I asked him why he thought that and he said it was because I was using supplemental oxygen. I told him that since coming to Miami, I largely hadn't needed the supplemental oxygen as  I was satting adequately at sea level (where I live is over 5,000 feet above sea level and at that elevation the work of breathing is much harder for everyone, not just me). The anesthesiologist refused to believe me--okay, fine, it's not like as a nurse I haven't worked with arrogant doctors who see patients as adversaries--so he sent the nurse in with a pulse oximeter to measure my oxygen saturation level. 

It was 97% on room air. 

That apparently pissed him off, so for his next trick he demanded that I pay $4,000 dollars as a pre-payment for the two days in the ICU before he would allow the surgery to be performed. I had to hand over my credit card to a lackey from the accounting department. The surgeon was shocked when she found this out as none of her other patients had ever had to do such a thing, even those who had stayed in the hospital following surgery. (I have my suspicions as to why he demanded it of me, but he was smart enough not to say it out loud and instead just went into full asshole mode.)

In the end, I ended up staying one night (less than 24 hours) in what the hospital is now claiming was a "semi-private" room (I was in a room with two beds, but there was not another patient in there with me) and being charged $2,000. Dave has had to call and call and call the hospital--he has more patience than I when he gets the runaround treatment--and he finally got them to at least say that they are going to send a refund for the other $2,000 of our money.

And speaking of that one night in the "semi-private" hospital room, after surgery,  I was dumped in a dark room while waking up from anesthesia, nauseous and disoriented, unable to move, alone, without a call light. I thought I was going to vomit and I didn't want to vomit all over myself, so I yelled for the nurse. I  yelled and yelled. The only person who heard me apparently was Dave, who heard me as he was getting off the elevator to come to my room. Even after that, he had to go out to the nurse's station and find the nurse and even then she didn't come in. Dave brought me a cup of ice chips to calm my stomach. Eventually the nurse came in--she also could barely speak English while claiming to be bilingual--with medication, but I saw her then and she did no new patient assessment or any kind of follow up care after administering the medication.

The night nurse--her English was slightly better, though she struggled--and tech--zero English, but competent at her job--showed up hours later to start their shift and were shocked that no one had been in with anything for us for hygiene or to help with anything in all the hours we had been there. 

That was the worst of it while I was in the hospital, but I'm sure the infection I got was from the inadequate care I got there in that first 24 hours after surgery. I was glad to get out of that crappy little hospital the next morning as staying another day would have meant another day with the incompetent day nurse who had provided next to nothing in terms of care.

So that was my hospital experience. 

Wednesday, February 25, 2026

Lazy

Day Before Yesterday:

The day's activities so far: A shower then a long nap then an errand and a swing through Freddy's drive thru for shared cheese curds and a mini vanilla shake. 

I got in around 1000 steps yesterday, about half of them deliberately, my new walking regimen that has me shuffling slowly back and forth from one end of the house to the other. 

Yesterday:

How are things going around here today? Well,  in case you're wondering about sleep: We were up late, then up in the night, then up again early. So that's how sleep is going. 

We were up early because I had a clinic appointment to make sure that healing is on the right track. It seems to be, so that's good. If only it didn't take almost an hour and a half in the car to get to and home from the clinic.  (They don't do virtual appointments anymore because why would they want to continue something that is so convenient for so many patients? ) I had to renew a couple of scrips as well, so at least that got done. 

We just got home a bit ago and I took some Tylenol and had a slice of Swiss cheese. I had a protein bar on the way home. 

Today:

I seem unable to finish a thought-- or at least a blog entry. Don't know why that is. 

It's early, not quite eight a.m. I'm up to take my morning meds and to eat something.  Dave's sister very kindly sent a box of steaks to aid my recovery and so I've had steak dinners the last two nights.  It's very tasty of course, but somehow a steak dinner doesn't hold me through the night and I end up either eating a midnight snack or waking up very hungry. Last night it was both.  I had some cheese and bread a bit after midnight and woke up just before seven and was very hungry. I have to take meds with food anyway so I had a protein bar and a big glass of soy milk. 

Now that that's taken care of, all I want to do is go back to bed.  I'm trying to be realistic about how much rest I need to heal, but resting as much as I am also feels like I'm just being lazy. 

Sunday, February 22, 2026

The Nerve

 How is healing going?  For the most part it's going pretty well.  The open part of the incision is rapidly filling in and coming together an we have stopped using iodine inside the area and just paint a bit along the margins, mostly to appear appease some superstition.

Unfortunately my nerves feel like they are on high alert all the time.  I think in part because of the amount of adhesive (which I have a mild allergic response to) from the constant tape and bandages that are required to keep the open incision and grafts covered as well as the tape that still covers the healing and healed part of the original incision (this is the tape that I just have to wait to fall off on its own). All of it seems to keep my immune system just constantly riled up and there is a constant din of irritation coming from the area. 

Oh, and speaking of nerves, my sciatica has been putting in an appearance as well. So that's been fun. 

Anyway, yesterday was an exhausting day.  It's three and a half weeks since the surgery but I'm still pretty tired (poor Dave is running on fumes). All the activity of the day just put me out of commission.  Not only did I get a shower in (with Dave's help still)  but I also went out with Dave to pick up a grocery order and we got burgers for lunch. Then I prepped and cooked dinner with Dave's help (sautéed zucchini, fried rice with tofu and some spinach that we ended up tossing after I cooked it because it tasted slightly off and I'm not taking any chances). After dinner I napped until it was time again to change my bandages.  By the time we finished it was after midnight and I just went back to bed-- and lay there awake until after two a.m.

I fell asleep and woke from a dream about my little brother. Something in me remembers: It was on this day twenty years ago that I came home for his funeral. 

Friday, February 20, 2026

The Healing Slog

 My therapist emailed to check on me and see if I was ready to resume therapy.  Not a chance.  Every bit of energy I've got right now is going towards rest and healing.  Maybe in a few more weeks when we're not still doing twice a day dressing changes. (And oh yeah, i made an appointment with the wound care clinic.  Their first available appointment for an open surgical wound that was infected? The end of next month. Anything happen before then? Go to the emergency room. 

Welcome to the American healthcare system.)

The surgeon sent the pathology report.  Everything is fine, thankfully.  She removed just under 16 pounds. I can breathe more easily and move around more easily. It's a huge change. 

Otherwise the healing process rolls on, on its own schedule apparently. That means minimal physical activity besides walking, not raising my arms above my head, not lifting anything above 10 pounds.

I'm not going to have that bikini ready body by summer probably. We're all just going to have to live with that disappointment, is what I'm saying to you. 

Tuesday, February 17, 2026

Today

 It's been a few days since I blogged. Dave and I are both slowly recovering from the feelings of extreme exhaustion that came home with us from Florida. Dave doesn't need to help me in and out of bed which means he can have some unbroken sleep.  (Not for me, though, as I'm often up throughout the night.) Gray Kitty has yet to figure out why he can't climb on my chest for cuddles while I'm laying down. The rest of our home life goes on, only now with twice daily bandage changes and so much more protein. 

The surgeon recommends 100 to 150 grams of protein a day and i struggle to get that on a vegetarian diet, so I finally relented and started eating more meat. We've been home a week and in that time I've eaten my way through two small pot roasts and a whole chicken. It's a lot. Tasty but overwhelming. 

What else is going on today? 

Today is windy, a very typical springtime thing around these parts. 

I haven't had any pain meds today, something i haven't been able to say for three weeks at least.  That means that my pain level is lower today. Yay?